Our Mission Statement

Our mission is to serve as a resource to the Huntington’s Disease Community. 


To do so, we will provide services, to not only those diagnosed with and those at risk of developing Huntington’s Disease, but to their families and the communities that serve them. 


TCHF is a non-profit 501(3)C corporation founded in 2005.

How We Help

Support Group Meetings

We host monthly support group meetings, alternating between Illinois and Indiana. This open safe environment allows families to share their many concerns with individuals that have gone through or who are now going through life with this dreaded disease. If you know of anyone who can benefit, please call or email.

Financial Assistance

We review requests for financial assistance from our HD families. We have assisted our families by providing:  medical and dental procedures and supplies, household repairs, vehicle maintenance, caregiver assistance, household medical equipment, Broda chairs, transport chairs, hospital beds, bedside commode’s and bathing equipment.

Scholarship Fund

We are excited to announce we have created a scholarship fund available to high school seniors who are at risk for Huntington's and/or the family has been affected by Huntington's disease. The scholarship has been named "Race for the Checkered Flag". We want to assure our young adults that their future will be a win!

About Us

TCHF

Our Story

Memorial Video

Share Tom's Smile

Upcoming Event

Spring Fling

Board of Directors

Barb Cellini Executive Director

David Cifelli President

Link to HD Buzz

HD Research News

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About Huntington's Disease

Huntington's Disease

Huntington's disease is an incurable, hereditary brain disorder. It is a devastating disease for which there is no currently "effective" treatment. 

Nerve cells become damaged, causing various parts of the brain to deteriorate. The disease affects movement, behavior and cognition - the affected individuals' abilities to walk, think, reason and talk are gradually eroded to such a point that they eventually become entirely reliant on other people for their care. 

Huntington's disease has a major emotional, mental, social and economic impact on the lives of patients, as well as their families.


Hereditary

Huntington's is a hereditary disease. Children of an HD gene positive parent have a 50/50 chance of having HD.   

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